Posts Tagged ‘Overactive Thyroid’

Success Stories by Thyroid Sufferers

As one Cree storyteller said: Stories are Beings. You invite them to live with you. They will teach you what they know in return for being a good host. When they are ready to move on they’ll let you know. Then you pass them to someone else.

Stories will also sustain you in times of challenge, frustration, and failure and it will confront you in times of confusion, pain, and loss, as they do with me.

When it comes to success stories about people battling thyroid disorders, including Graves’ disease or Hashimoto’s, you can not find many. Not because there aren’t, but probably because they are not written in paper yet…But here are some that I want to share with you…To lift your spirit, to give you hope and assure you that there is always a way out:

MargaretMeyerWeb11. “My name is Margaret, am 62 years young, mother of 4 terrific daughters, and I live in Australia in a rural countryside. Have been a medical pathology technologist for 20 years but have always done all sorts of creative art leading to having an art supplies and teaching shop till 4 years ago…..Click here to read her success story:

2. ” My name is Sue. Perhaps I am a-typical because I first started with Graves Disease symptoms in 2001, diagnosed in 2002 when I first consulted my GP.   My journey therefore has been a long one.  I was told it was hereditary and my mother was hypo-thyroid so I didn’t delve further at that point into why I was affected”….  Click here to read more…

3. “Simona’s story..10 years ago I was diagnosed with Graves’ disease. I went to see my doctor after I’ve put on 10 kilos (~22 pounds) in the space of 2 months. I knew something was wrong, since I’ve always been very, very active, athletic, toned and never overweight. I was my doctor’s first case of someone gaining weight with an overactive thyroid”…..  See more at:

JanArmstrongWeb4.  This is Jan A.. She is 61 years old and has 3 sons. She was born in England and immigrated to Australia in l976.  She is a psychologist and enjoys countryside, riding, yoga, dogs, cinema, reading, drawing, gardening, walking, friends, family, travel, creativity, writing and alternative health. But one day….Read more about her journey here:

I have many more to share…and if you have a success story you want to share, let me know, I’ll be happy to publish it!

5. The next workshop is happening on:

02/19/2014, Wednesday at 2 PM EST.

Register and join us:

Thyroid Workshop for better health!

 

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Fatal Cases of Steroid Treatment for TED, Unnecessary Thyroidectomies…….

I was blamed many times that my writings and articles are not supported by purely scientific research. To some extend this is true- I am writing mostly based on my own experience and the experience of all my subscribers in the past 7 years and their feedback on many questions.

It happens  what we have found on a “try and see” basis is supported by scientists as well. Below I’ll share a few researches, related to either Graves’ Disease, Thyroid Eye Disease or Hyperthyroidism and mostly providing evidence behind the pure human experience.

1. As we know, one of the medical methods for treating Thyroid Eye Disease is the steroid treatment. I honestly never liked the idea and preferred instead more natural methods like Flax seed oil, Chamomile, eye exercises. Here is what happens:

A few scholars, Marcolli and colleagues examined the fatal and non fatal of streroid therapy on Graves’ Disease patients by a questionnaire survey, the results of which were published in Eur J Endocrinol 2012;166:247-53. Epub November 4, 2011.

This survey was mailed to 128 members of European Thyroid Associations, you should read here “endocrinologist treating patients with TED”. The doctors were asked about side effects when treating patients with oral and IV steroids. The side effects were more severe, it happens, when taking oral streroids. However, more death cases were reported with patients using IV steroids. (Yes, you read that right- people were actually dying). 7 patients died: 4 of liver failure, 2 of stroke and 1 of pulmonary embolism.

Conclusion: Steroids should be used only with patients with severe Thyroid Eye Disease. Who decides how severe is your TED, and should you or should you not get steroid treatment is whole another story.

2. As you know me, I am totally against thyroidectomy (complete removal of the thyroid), which causes by the way permanent hypothyroidism. Do you really need a total thyroidectomy when you are diagnosed with noncancerous thyroid disorder?

Noncancerous thyroid disorder in this particular case is referred to goiters and nodules, which do not have cancer cells. Nodules are usually abnormal growth of thyroid cells, while goiter is generally enlarged thyroid, caused by overactive, underactive or even normal thyroid. Both, goiters and nodules in this research are non cancerous. But why then the thyroidectomy rates increased from 17.6% to 39.4% in USA only? Why doctors are prescribing thyroidiectomies, when they are not necessarily needed?

That question was researched by Ho TW and colleagues, in a 15 year population based study reported in Am J Surg 2011;201:570-4. The administered cases of total thyroidectomy, they found in the past 15 years in USA especially, dramatically increased. They also found that the time spend in hospitals by the patients, as well as the hospital charges were significantly higher. The rate of post operative complications were also higher, compared to partial thyroidectomy cases for example. Patients in urban hospitals were prescribed more surgeries, compared to patients in rural hospitals.

Bottom line: in many cases with noncancerous goiters and nodules, doctors  prescribe unnecessary total thyroidectomies, compared to the rates some 15 years ago. Do you still wonder why?

Reference: American  Thyroid Association

http://thyroid.org/patients/ct/volume5/issue1/ct_patients_v51_8.html

More to come……

The 10 Why’s of a Difficult Thyroid Patient…

Why #1:  If I wasn’t a difficult patient- I wouldn’t be talking to you right now, or you even be able to read this article. Many years ago when I got sick with hyperthyroidism I literally had to fight for my treatment options, even though I was told that only 2% of all the hyperthyroidism patients get healed with my chosen method of treatment (i.e medication). I took my chances, and as you see, I did a good job, I survived.

Why #2: Doctors, many of them, no matter how well they are trained, how well they excelled in their education, and how many straight A’s they got at the medical school- they still treat you as a  diagnose (which might be very wrong indeed), but not as a person itself. You are a person, not a diagnose, even not a symptom!

Why# 3: Regardless of the Hippocratic Oath all the doctors took when finishing the medical school, many of them have to be reminded constantly that to treat appropriately the patient is even more important than the commission % they’ll get from pharmaceutical companies for prescribing medications and procedures that are not the best for their patients. Sorry, not all, but many doctors do that!  Some years ago I worked as a psychotherapist in a medical office with some doctors, and while I was trying to take my patients off the drugs, my colleague next door was generously prescribing all kinds of them, because, I quote to the best I remember ”I get 4% for prescribing certain drugs”. Needless to say, I left soon this medical facility for good, and never went back.

Why# 4. For many medical procedures, including thyroid surgeries and Radioactive Iodine Treatments the hospitals, and respectively the medical offices get paid times more, compared to the traditional medication treatment. Check, if you don’t believe me.

Why not then, suggest, advise and push the hyperthyroidism patients to receive these expensive procedures, as they are believed to “remove the problem completely”, i.e the thyroid, faster and “safe”? The excuse here is: “Let’s completely destroy your thyroid, in case of possible remission in the future”??? Really? Doesn’t that sound like “Let’s cut your leg, in case you break it in the future….”? Same pertains to the numerous C- sections for pregnant women (to avoid possible complications they say. Yes, my grandmother is laughing right now), but that’s another story.

Why #5: For the past 60 years or even more the only treatment options for Graves’ Disease so far invented by the traditional Western Medicine are: 1. Medication (methimazole or propylthiouracil), 2. Radioactive Iodine Treatment and 3. Thyroid Surgery (subtotal or total). That’s it. No matter how much money are spent on researches every year, endocrinology doesn’t seem to advance a lot on this particular subject. And Graves’ disease patients don’t seem to get less in number, either, compared to the disease rates from some 50 years ago.

Why then just you do your own research and try alternative, complimentary, Eastern- Medicine based, supplemental, herbal or any other methods available as well? Be a difficult patient, and try to work this out with your doctor. And if he seems uninterested in cooperation- just fire him and get another one.

Why #6: This is your body that’s sick and affected. You are experiencing all these debilitating symptoms, not the person who treats you, no matter how qualified he is.  Stop shaking then when you have to defend your own health choices. Your body- your choice.

Why #7: Doctors are never 100% sure which is the best medical option for you, theoretically speaking, just because we are all different humans. They can only guess and do their best experiment on you. They don’t know if the side effects on any medication will manifest on you or not, they don’t know how your body will react. There is no way to know that information no matter how experienced the doctor is. So why don’t you participate actively in that body experiment of yours, share your opinion, fears and concerns? That’s called again- a difficult patient. Be difficult.

Why# 8: Isn’t that strange how many people can argue with their auto mechanic about expensive car repairs, or try to negotiate a better deal with car dealer, or endlessly argue with their wives/husbands regarding unimportant stuff, but when it comes to their own health, they become speechless, and deliver themselves to the mercy of their doctors to make the health decisions for them. Now, go back to the medical office and be that problematic, tough, person for the sake of your own health!

Why #9. There is this doctor, whom I respect very much, his name is Bernie Siegel, M.D, he is a very old doctor on cancers, who also wrote a lot of books about treating cancer patients with non- traditional methods (and traditional as well). What I vividly remember from his books and observations was that cancer patients, the ones who are difficult and actively participated in the treatment process, cured from their cancers quicker, and at higher rates, compared to the other patients, whom were not involved so much in the process and relied mostly on their doctors. If this works for cancer patients, why would not work for Hyperthyroidism/ Graves’ disease patients? It does, in fact.

Why #10. You are witty, clever, educated and intelligent human animal/ being. You have also access to all kinds of information, available in books and Internet, and in many other places. Step up on that rule and rule your own ship called “my health”. You have the absolute right to do so. Bon voyage!

 

P.s. If you want to know the stories of other people, who also were difficult patients, click here:

Graves’ Disease and Hyperthyroidism- incurable! Who said that?

The REAL LIFE STORIES of 32 REAL People will show the truth!


New Blog about Graves’ Disease and Hyperthryoidism..is open now

Welcome to my Blog about Graves’ Disease and Hyperthyroidism. Many of my clients asked me thousands of times to create a support group or a blog, where they can discuss  different topics and questions about Graves’ Disease, Hyperthyroidism or Thyroid Eye Disease.  Now this is a fact- and I really hope that this blog can help many people in the world with similar problems.

Now is the time to ask your questions and share your experience. Be my guest.

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