Welcome to my Blog about Graves’ Disease and Hyperthyroidism. Many of my clients asked me thousands of times to create a support group or a blog, where they can discuss different topics and questions about Graves’ Disease, Hyperthyroidism or Thyroid Eye Disease. Now this is a fact- and I really hope that this blog can help many people in the world with similar problems.
Now is the time to ask your questions and share your experience. Be my guest.
My Blog About Graves' Disease and Hyperthyroidism 
Posted by Hadis on February 22, 2009 at 6:05 pm
congradulations for starting the blog,
I wish its success as well as the success of your website
Posted by jeannette on April 21, 2009 at 7:51 pm
Having this disease has been the worst year of my life.I like to congratulate you on starting the blog its a good idea . I really don,t like taking tablets and when first diagnosed asked if there was an alternative to the medication and was told no. In the beginning i was taking steroids which made me cry, get angry for no reason .I felt that i was constantly running around like a looney and to be honest like i was taking viagra lol . With the steroids i was taking replacement thyroxine and levothyroxine .Only two of these tablets had side affects ,hair thining ,palputations sweating not sleeping but i found that the tablets seemed to heighten the effects even more.Did you find the same thing happen to you? .
Posted by sbankova on April 23, 2009 at 10:21 am
Hi Jeannette,
I guess your doctors were trying block& replace therapy, to correct your thyroid problems. Even though I don’t understand why they prescribed you steroids, along with levothyroxine….I’ve also never been on thyrotoxine, I don’t know their side effects, but definitely, there are many..The listed symptoms are very typical for hyperthyroidism. My advice is to get a second opinion from another doctor. If this is the correct diagnose and correct medication, you should not have all these side effects. Please, check with another doctor.
Svetla
Posted by Tang on June 1, 2009 at 4:58 pm
yes I have felt the same and I am take 6 Atenolol, and 6 Thyroid meds daily. I get nausiated and extremely tired all the time and yes it urks me so much. I am suppose to have physical therapy on my shoulder but my therapist is worried my heart rate will race too high and I will stroke out during therapy. I am still taking the medication and it is not really helping my throat always feels like it is a big bulgs stuck in it and it is hard to breath at night. I still sweat but I have not yet had my thyroid removed I am still waiting.
Posted by Blanca on April 23, 2009 at 4:46 am
Dear Svetla:
I was so depress the last months and i am taking valerian pills. I am feeling much better.
I got when i was a kid, vitiligo disease, i have been searchig and it has a connection with grave disease.
Since I was diagnosticated grave disease all my white spots have been growing.
Do you know something about this???
Posted by sbankova on April 23, 2009 at 9:57 am
Hi Blanca,
I am glad that valerian pills are helping you, even though they are used more for anxiety and sleeping problems. Regarding vitiligo- I don’t know how this is connected with Graves’ Disease, but what I know is that any skin disorder is linked to self- image and reflects this to the outside world. Vitiligo, psychologically speaking, indicates difficulty through a separation, a loss of contact or communication. You tend to be a rescuer or protector, especially of the opposite sex. This is very similar to the psychological profile of people with Graves’. They also tend to be protectors for the others and more giving than accepting, they also have problems with communicating their needs to the others. It seems to me that your body is giving you a “second” message with Graves’ disease, that has the same roots. Once you correct this, both will improve, or “step back” if I can say that. Consider this as well.
Best regards,
Svetla
Posted by Blanca on April 23, 2009 at 6:09 pm
Dear Svetla:
Thanks for that fantastic information. Everything that you have written is true.
I am learning the conecction between mind and body. In scatology they say that skin is proteccion and you are saying the same thing but with better explanation.
That habit that i have to give and give is affecting my health but it has been so long with that wrong behavior.
Posted by elisa on April 27, 2009 at 9:46 pm
Hi Svelta and unknown people with the same disease… grave’s! This surprised me!
But, first i would like to tell you all that i’m portuguese women and i write very bad english (eheh) I’ll try to write the best i know.
So, ham, this disease came in the moment i was more active because, my way of life was: “when i was down i must work a lot to didn’t think about it”. Do you understand? I had a lot of problems on this last years like father’s health, loving displeasure, problems at the work. So, i try hard my hobbies: runing, cycling, etc. I’m 49 years old and i looked at the mirror and saw a big left eye. Tcharam! Grave’s was loving me! I looked for net information because doctor said to me that this is uncurable, and i wasn’t believing. So i fiound Svelta’s site. No, i know more about this. Thank you Svelta.
Posted by Diana on May 9, 2009 at 12:06 am
Good morning from the land down under : )
I had read that Graves onset can occur after child birth however it wasn’t until 9 years later that I was diagnosed. I had been working on a self portrait painting for art school and when I had finished I noticed one of my eyes bulging out…and generally a real difficulty seeing…everything was extremely blurry. I thought I had strained my eyes because I had worked almost 48 hrs straight on the painting. Had my eyes not changed I would have accepted my ongoing general symptoms as simple exhaustion.
In one way it was a tremendous relief to know that Graves accounted for so many symptoms I had been coping with and what amazed me is that I had been feeling pretty out of wack for years and thought little of it. My lifestyle has always been extreme exploitation of physical an mental energies and this didn’t change until several years following my diagnosis – primarily as so little was known about this illness.
Until a stumbled upon you web site Svelta, only inner suspicions regarding self care and specifically my attitude, guided me towards healing. In this regard your workbook makes a lot of sense to me. Even had I not become ill, making myself a priority was never on the cards. In an ironic way I have gained invaluable person insight through becoming ill – I have needed to slow right down, I have changed my priorities completely and I have returned to spiritual basics in pursuit of happiness.
I really appreciate your whole attitude with regards to dealing with Graves. Thank you for your book and your care Svelta. I don’t feel as isolated and I definitely feel more positive in regards to healing.
A BIG Thank you !
Di
Posted by Blanca on May 16, 2009 at 1:59 am
Dear Svetla:
I went to see a doctor because i wanted a second opinion. He said to me inmmeditatly that i have to take a radioactive iodine and i have to be in the hospital for 7 days. I didnt like him, and I remember all the good advices that you have given to us.
But there is something that he told me and i am in a shock. He told me that my eyes are not going to be the same anymore.
Is that true???
Posted by elisa on May 16, 2009 at 8:07 pm
Hi Blanca,
My doctor told me that too. He told me that when Grave’s d. gone, i must do stetic cirgurie. Svetla it is true?
Blanca, the doctor spoke to me that this G.D. stay with me during 2 or 3 years. Svetla, is this true?
Posted by sbankova on May 18, 2009 at 8:58 am
Hi Blanca and Elisa,
Many doctors “push” the patients into RAI treatment. I don’t agree with this..Many people regret that decision after all. Also, after the RAI treatment your eyes may become even worse, but nobody tells you that…All people are different and nobody can tell for sure what will happen- but my experience shows that RAI has more negative consequences than positive- and it’s forever- you can never get your thyroid back.
Regarding the eyes- this is also not true that your eyes will never be the same. If you look at me now, you can never tell that I ever had Thyroid Eye Disease..
Regarding the eye surgery- it very depends on what is the real situation with the eyes. There are different degrees of eye impairment. It’s an option, if nothing else works, but you don’t have to do it. It’s a matter of decision. It’s a long process, your thyroid antibodies have to be within the normal range for some months and than you’ll start to see an improvement. The thyroid antibodies are responsible for the Thyroid Eye disease.
For me, the best doctor is the one who listens to you, who is positive, who is willing to work with you on different options, who is open to other methods and wants the best for his patient, a doctor whom you can trust. And there are doctors like that. Use your own judgment and trust what you feel is right for you.
Posted by Blanca on May 18, 2009 at 8:31 pm
Thanks Svetla.
My experience with that doctor was horrible. He touched my niple and my genitals when he was doing the examination.
He said that i had to take the RAI and I had to be hospitalized for one week.
But i got more determination to get my health back with your advices and with some alternative remedies.
I am also taking turmeric before breakfast and next month i will do yoga again.
Thanks xxxx
Posted by elisa on May 18, 2009 at 9:10 pm
Hi Bianca,
Turmeric? this is good for our GD? I’m taking oleo de sementes de linho before breakfast and malte of cevada with milk for breakfast. I know any thing more to tak.
Svelta, a few days ago i taked corticoides “metilpredisolona” in the hospital for 3 days to lower my antibodies. Now i’m with hipotyroidism. I dont know what to cook or eat now. … please tell me what to do.
Thank you
lisa
Posted by sbankova on May 20, 2009 at 6:10 am
Hi Elisa,
To the best I know, there are no medications that can affect directly the thyroid antibodies. Usually, they’ll improve naturally after your TSH, FT3 and FT4 have been normal for a few months- it’s a graduate process.
If you are jumping from “hyper” to “hypo” mode, you should check for Hashimoto’s disease- this is very typical for this disease. The other reason for you being hypothyroid now could be an overdose of your medication. Get a second opinion, so you medication could be adjusted properly.
Regards,
Svetla
Posted by Blanca on May 18, 2009 at 10:41 pm
Turmeric is an spice that is very famous in India, it looks like ginger.
I had heard about it, and it helps to clean your liver, and if your liver is clean then your body is better.
http://www.whfoods.com/genpage.php?tname=foodspice&dbid=78#healthbenefits
See that is an antinflamatory. Since i have been taken it plus the flax seed oil pills my eyes have been improved so much.
Regards .
Blanca
Posted by elisa on May 19, 2009 at 10:19 pm
Hi Blanca,
Thank you for your kindness. My liver is ok. I think the tumeric is gengibre in portuguese. How do you eat that? in powder or in the food?I’m going to read more about this and take some.
regards
lisa
Posted by Blanca Mares on May 20, 2009 at 5:28 pm
Dear Svetla:
After that terrible experience that i had with that doctor, I got more determination to get rid off this disease. I was using my mind every day and my eyes are much better, plus drinking the turmeric tea.
I went to a Biomagnetism therapy. It was fantastic. It really works. I fell with so much energy, i am happy and my eyes improved a lot.
About the turmeric, I dont know in portuguesse because i am mexican. In Spanish is Curcuma. It is not ginger.
In a half of cup, add warm water, add some drops of lemon and add a tip of a teaspoon. Mix it very well and you shoud drink it before breakfast.
Regards
Blanca
Posted by Maggie on May 25, 2009 at 11:03 am
Hi Blanca, Elisa and Svelta,
Just reading the posts and wanted to add my experience.
I was diagnosed with Graves disease a year ago. it has taken me this time to fine tune my medication so that i feel neither hyper nor hypo thyroid. it took about 3 months to bring them back into the normal range and then of course they swung into the hypo range. and then back again each time a smaller swing.
i take a thyroid blocker – neo mercazole and then balance the correct amount of thyroid hormones with levothyrox. it has required regular blood tests to get my levels into the range 1.5 – 0.5. anything higher left me hypo thyroid sleeping 14 hours a day, lethargic and putting on weight and anything lower gives me tachycardia, bulging eyes, terrible aggressiveness and insomnia………. I have had lots of therapy through out the course of this disease (indeed lots before!) working on the psychological issues that you mentioned.
I have also had to really tune in and watch for the slightest symptom of either hypo or hyper and make tiny adjustments in my thyroid hormone medication (levothyrox) to correct for this. so a daily process of self observation!
I wanted to ask you Svelta if I understand correctly that normally my thyroid antibodies should have come back to normal by now and I should ask my specialist to test for this? as i may be able to stop all medication?
Thanks Maggie
Posted by sbankova on May 25, 2009 at 6:24 pm
Hi Maggie,
your thyroid test results, TSH, FT3 and FT4 should be within the normal range for a few months at least, then your thyroid antibodies will start to get in the normal range as well. “Block and replace therapy” is one of the options, definitely, and it works for some people, not with all. Ask your doctor to check your thyroid antibodies, if they are OK, there is no need to keep taking the medication.
Svetla
Posted by larry artale on May 25, 2009 at 12:07 pm
dear svelta,
thanks for all the emails and advice. i look forward to all the information i get from you regarding hyperthyroidism and graves and share those with my doctor.
i was diagnosed with hyperthyroidism in 2006 and was going to NY eye and ear clinic at that time. there they recommended ablation, which i did not want as i did not want to be on synthroid all my life, so, i went to an endo doctor in florida and she preferred treatment with tapazole to see if that would help. it did, i am now totally free of the hyperthyroidism however i still have the graves antibodies and one eye slightly protruding. i am now on a very low dosage of tapazole, .25 mg twice a week. i am seeing an eye specialist who did not recommend decompression as it is too risky, however, she is going to put a small stitch in the corner of my eye for cosmetic reasons and also to allow my eye to fully close when i sleep. i am having that done next month. also, if and when they eye goes back to normal the stitch can be removed.
my disease was brought on my emotional stress and while i prefer not to be on petrochemical drugs i do not know what else to take to get rid of the graves. i recently read, in your email, that l-carnitine may help so i am going to get that and start taking that everyday as well. i have also taught myself how to manage with emotional stress, i have surrendered the need to be in control.
the emotional well being is directly related to auto-immune diseases therefore my advice to others out there in hyperthyroidism land graves disease city to teach yourselves how to control the levels of emotional stress way way down. also, i a year and a half ago i changed my diet to vegan, which has helped in so many ways, including stress control.
once again, thank you svelta for all your information and care.
peace and love,
larry
Posted by Karen on January 25, 2010 at 1:26 am
If I may. One week ago I was dx with Graves. I have a small goiter. I am taking .25 topazole ever day. I want to get rid of this. Funny how I never thought anything about the rushes i would get other than to wonder what I was nervous about.
That was not nervous, Now I know that was my thyroid.
I wonder if I were to take a Zanex when i feel that if that would help my thyroid. The thought of pills everyday is not something I am use to. Until now, I’ve only taken vitamins. But a Zanex once in awhile rather than a pill with side effects everyday, is more palatable.
Sorry, for the dump on thoughts.
What i’m wondering is how you are doing? You came a long way and were no longer hyperactive. Hoping to find you well. tx
Posted by joan patton on May 25, 2009 at 3:06 pm
Hello Svetla, I have just been diagnosed with graves disease and hyperthyroidism. I am still coming to terms with . It is hard to accept that i am unable to physically do the things i used to do because my muscles won’t allow it.
Posted by sbankova on May 25, 2009 at 6:15 pm
Hi Joan,
you can always try yoga, that’s what I recommend. Your muscles will get better and you can do your things again. Graves’ is not a verdict, it’s a “fax” that we have to change the things that we usually do. I know that from personal experience.
Svetla
Posted by anni aydogan on May 26, 2009 at 2:32 am
Hello Joan Patton
I was diagnosed with Graves and Hyperthyroidism in December 2007 after I suffered a thyroid storm, i was very ill. I was taking neo mercazole to control my thyroid levels which were extremely high but for graves disease i had nothing, just a book. All foods which are considered healthy ie; salad, brown bread, rice etc all made me very ill, I suffered chronic muscle fatigue depression and panic attacks, nervous anxiety, hair loss, weight loss and weight gain and hyperventilated frequently. I made the decision to have a thyroidectomy because I couldn’t cope with all the symptoms, I could not afford all of the alternative treatments and therapy sessions, and my children and husband could not help me. It was the best decision I ever made, I had the op in August 2008 and it took me until April 2009 to fully recover from all symptoms but everything has healed, my energy is back and I feel like a normal person again. I think its great for people if they have the time and money to try alternative therapy, but for me, even my surgeon who was monitoring me said I was one of the sickest patients she had seen and advised me that surgery would be my best option. One other healing treatment I heard about was a lady in Turkey (my friends mother) had graves and hyperthyroidism and an alternative doctor put leeches all around the front of her neck and after a couple of sessions she was healed. Apparently they suck all of the bad blood out and she was cured. I hope you recover quickly whatever you choose to do, its a very unpleasant illness I know. I was 41 when diagnosed.
Best wishes
Anni Aydogan
Posted by Candice on May 25, 2009 at 3:44 pm
I have Graves Disease as of about 3 years ago. when I asked my endocrinologist what I should do for the disease, she said check it out online. Well, that is a lot of information online. I read that all diseases live in an acid environment. So,
I tried to eat an alkaline diet. I was starving. Now I just try to eat well.
Any dietary suggestions?
I do custom canvas work, so I work very physically.
I am now gaining too much weight, what are the numbers that reflect hypo-throidism?
Thank you,
Candy
Posted by larry artale on July 2, 2009 at 4:02 am
hey candy,
i gained 45 lbs in 2 years, i believe, from the tapazole medication which slowed down metabolism considerably. last year (as i wrote in an earlier post) my doc lowered my meds as the hyper is in full remission. i began losing weigh immekdiately, but slowly. then i changed to vegan diet (alkaline) and in 1 month dropped 25 lbs. i am now almost back to where i was when i began which makes me feel much better. only have to beat the graves, still have traces of the antibody in my blood.
the weight gain is natural from the treatment with meds, it’s time for you to change that diet again. i am always eating with the vegan diet and i am still losing weight.
try it, it may work for you… one thing if you make the commitment, don’t cheat, for like a three month test period, that will give you enough time to see if it works for you. hey, tonight i made a delicious vegan pizza, even non vegans loved it. there is a world of delicious food awaiting you!
Posted by Robin Ramirez on May 25, 2009 at 4:39 pm
I was first diagnosed with graves 16 years ago. Then again 4 years ago and now on my third battle with it. Each time I have used herbs and yoga along with aromatherapy to go into remission. I am under a doctors care who supports my decision not do any of the traditional western medicine treatments. On occasion when I feel the graves picking up I will take western meds until I can regulate my body. If any one would like any information please feel free to contact me.
Peace and Light
Robin Ramirez
Posted by elisa on May 25, 2009 at 8:10 pm
Sorry!
More a read less i know :((. What to do?
Posted by Kat on May 15, 2010 at 8:05 pm
Hello Robin and everybody!
I was diagnosed with Grave’s desisiase. I do not know what to do. Doctor told me to start taking methimazole. I do now want to take it because I am afraid of side effects. What else can do? I am in panic. I can’t control my body as I used to. What should I do? Please help me!!!!
Posted by Rubby on December 28, 2011 at 5:52 pm
Hello, I am 50 and was diagnosed with Graves Disease. Boy, did the heart pounding and feet tremors scare me! But, the doctor prescribed Methimazole 10mg. 3 times a day. I am feeling so much better! I was afraid of taking the medicine, but it is working. I am also very aware of what caused this disease and I’m doing my best in keeping calm. I’m taking the time to rest, breath and enjoy Life’s blessings. I know what caused this in me was definitely stress! It isn’t worth living like this. So I’m making a conscious effort to be Happy!
Posted by Christina Woods on August 10, 2010 at 10:17 pm
hi robin,
i have been going to an accupuncturist for almost three months and i go to an endocrinologist august the 18th for a thyroid ultrasound. i have graves and hyperthyroid.
could you tell me about the herbs and the amounts you take and what you think they do for you.
i don’t want the radioactive procedure of course, so any help you can give would be appreciated.
thanks. almost named my daughter robin
Posted by elisa on May 25, 2009 at 5:37 pm
Hi Svelta and all friends here!
I whould like to know why all the nature pills are to lower the levels of colestrol. This is a heart disease?
Bye
Posted by Karen on May 26, 2009 at 11:40 am
Karen Says: Your comment is awaiting moderation.
May 26, 2009 at 11:31 am | Reply
With Graves Disease, low thyroid or high thyroid, or any other medical, mental, emotional disorder, remember one thing: It is YOUR BODY! Blood tests, as well as many tests are a GUIDELINE, not everyone fits into that guideline. And if a doctor tries to say you are WITHIN the normal guidelines; say goodie, but it’s my body and “medicine is a practice, and not much is known about thyroidism” (or many other problems). I was told by a highly respected endocrinologist that I was within “guidelines” and yet my body was in the middle of a thyriod storm. I ended up with heart and brain problems, emotional and mental and other medical problems that followed. Although my blood tests were in the “rabge” the adrenaline was beating my heart down. Specialists check their specialty, not the whole body. I finally found a wonderful endocrinologists, he was an older man and retired 2 years after I met him. I haven’t gone back to an endocrinologist since then ( 7 years), I gave all my information to my primary care physician (look for one you are comfortable with and will let YOU talk about how you feel and be able to discuss items and explain “why”. If he is too busy to listen or has the “I’m the doctor (God), mentality, ” find a new doctor). My primary listens, orders tests I request to check on the progress of things I want to know about and feels he should, too, and we work together with specialists, but my primary is at the center for me to go to. And a first amazing, yes amazing highlight: flax seed oil or flax oil has actually begun to make my BIG EYE from thyroid eye disease begin to retract and go down, and it’s been less than 3 weeks, after living like this for over 6 years and the only option given was surgery to remove the bone from behind my eye!! Thank you, thank you, thank you!!! God Bless to all. I am 48 and this started at the age of 37, and I am just now getting adjusted to all the went wrong and how the rug was ripped out from under me with Graves Disease. Don’t go through what I did. Stay in the blog.
Posted by Julie Battistelli on January 13, 2010 at 9:08 pm
Dear Karen,
How much flax seed oil did you use on a daily basis to see the results with your eyes?
Posted by linda on January 24, 2012 at 3:06 pm
Hi Karen, Loved your letter. Thanks for the tips and good advice. I also have TED and am scheduled for emergency surgery quite soon and I am terrified but I did go ahead and purchase the flax oil today, so here is good luck to that. I experience severe facial, eye and head pain from the TED. Did you have any of that? I got the TED after RAI three years ago and i was fine for a while but have now relapsed and once again i find myself searching for a doctor who can help me. My diagnosing physician got the I am God complex and is now beyond any help. I am quite off my head again with this disease and sometimes feel the end is nowhere in sight. Look forward to hearing from you.
Linda adam-linda@lantic.net
Posted by joan patton on May 26, 2009 at 1:09 pm
thank you ANNI for telling your story. all this information is helping me to understand the illness. Svetla s book has been a godsend and i am going to try herbs , vitamins , and change my diet to hopefully improve my condition—– this is all very new to me but i am willing myself better. take care , joan
Posted by jeffin cheong on May 26, 2009 at 3:03 pm
Hi Blanca,
Interestingly,you used tumeric and feels better for your eye, i am also of the idea of using natural remedy as I have been told by my Doctor to use drugs lkie prednisolone and methotrexate, as a result of long time usage,i have put on weight and getting a moon face, that is what i can see in the mirror,I don’t know what other damages it will continue to do to my internal organ, hopefully not. Tumeric has medicinal value, anti inflammatory but too much can cause heatiness. My protosis or bulging of one eye is really giving me alot of problem, is there anyone out there has a Euthyroid Eye Disease? no problem with the thyroid but has a swollen eye mucles and all the symptom of a G.D. I have had this for a year already and the disease is still active, anyone can offer any soothing advice? thanks for reading and take care. Jeffin
Posted by elisa on May 26, 2009 at 10:50 pm
Hi jeffin cheong!
I´m lisa. I’m portuguese. I had 4month ago one open eye, the left eye! I had doble vision and my muscles eyes were with inflamation. My doctor sugest prednisolona for the eyes but T3 and T4 were good. My doctor called hypertiroidism sub-clinic. Now, after the prednisolone, i make analises and have hypotiroidism, but the eye still open! I dont know how to cure this and doctor saied to me that is impossible! I was a smoker but i stoped smoking. I was a atletic. Now i rest a lot. I love my tiroid and she is good. Why have i so many antibodyes doing this GD? If you know something, tell me.
Onother thing, i surch this disease in net and i saw that George Bush, his wife and his dog had GD. So, do you know if this disease is contagious?
take care
lisa
Posted by jeffin cheong on May 27, 2009 at 2:24 am
Hi lisa’
we know we are not alone out there, I seek treatment and I shall continue this quest until the disease is finished, just like you,i started to learn about this disease as soon as I found that I have them. so far, I have one eye bulging with the eyeball looking downward, can’t move upward due to the swollen muscle, I have had twice IV methyprednisolone treatment , 1gm for 3 days, each time the eye feels very comfortable after the treatment, but 4 weeks after that, the same old ,lousy and disturbing feeling comes back again. Doctor said the disease is still active, just have to be patience,one day, the disease will burn out itself. I asked Doctor how long will it be? that’s a million dollar question, thru’ their experience, 18 to36 months then,we can do surgery to correct our diplopia(double vision) and others if deem necessary. Meanwhile, lisa, keep yourself healthy,continue to do exercise, control your diet, do not take alcohol if you are on medication and sleep early, like 9-10pm, it is believe that the body will heals itself better if you sleep around that time, I know its tough , most of all , keep in touch, we are not alone out there, take care, Jeffin
Posted by Bianca on May 27, 2009 at 5:15 pm
Hi I was diagnosed with hyperthyroid since 2005 and I am on a waiting list for surgery at my local hospital..I really don’t want to do surgery but that was the doctors decision. I feel much better these days and I am able to go back out to work. I was terribly ill and had to quit two jobs.My neck is swollen…they said that I have nodules….I was taking neomercazole and I am off it now. I also took propanolol to ease the symptoms because I was going through thyroid strorm with palpitations…I want to know whats good and whats not good to eat with my condition….my relationships with everyone in my life was in trouble because of my responses…I miss exercising and going to the gym….my doctor advised me not too. I love aerobics and I really miss it…..I weight fluctuates a lot….I don’t have much feelings as before and I am worried about that. Is everything lost? I decided to come off propanolol and I am afraid that something will happen…Please advise me….
Posted by Tang on June 1, 2009 at 5:17 pm
I was on propanolol also it controls your heart rate and you should not stop taking it unless your doctor ordered it. My doctor switched my propanolol to atenolol because I kept getting sick on propanolol. You heart will race without the medication and that is why you are not to exercise as well because your heart rate will sky-rocket and you could have a heart attack or stroke. Your doctor really needs to explain the importance of your medications to you because trust me I felt the same way. My heart does actually calm down since I have been taking my medication but my physical therapist still will not allow me to do therapy on my shoulder. I know your frustrations hang in there and talk to your doctor he has to tell you just ask. Good Luck and take your meds lol. Tang
Posted by Bianca on May 27, 2009 at 5:18 pm
…..my hair is also cause for concern because of the thinning and stunted growth…i have brought all the best hair products but I read that propanolol adds to hair loss…please advise me…..
Posted by Tang on June 1, 2009 at 5:22 pm
ok this is going to sound crazy but i was told recently for hair loss to use old motor oil the oil that has ran thru the car and is drained for oil change, use it in the bald spots, I have not really tried it yet but I have seen it work on a friends head. Another remedy is blue magic hair grease. Blue magic does work I have used this one. I am however looking for some used motor oil to dab in my bald spots.
Posted by Strong Again on June 25, 2009 at 3:54 am
Hey, GD friends!
I’ve been taking H-Pantoten-3 for hair loss. The tablets contain “highly concentrated Swedish brewer’s yeast extract rich in natural B-group vitamins. Also contains a nettle extract rich in silica – for abnormal hair loss, healthier looking skin and shiney less brittle nails.” It works FAST.
This was prescribed to me by my naturopathic/ homeopathic doctor who was a western medical physician in France. He is awesome and I feel so blessed to have learned about his practice from a friend who unfortunately had to have her baseball-sized tumor in the thyroid removed before it became cancerous.
The doctor is giving quite the dose of natural drugs, including lots of drops (don’t know the words – looks like lupulinum TM, Chini, lachesis) and lots of sublingual mini tablets: ignatia, sumbul, lycopodium coffea tosta, and previously sanguinaria. His philosophy is that GD can be cured if: I adjust my mental patterns through hypnotherapy, cleanse my body of physical toxins, and take the drops help the body start regulating itself. He has received a letter from the sceptical endo of another patient who was SHOCKED that this man with such a bad case of GD was healed. Totally Liberating!! It IS POSSIBLE to get well! 🙂
Also, this alternative doctor calmly told me that GD is often seen in people who heard a lot of criticism at the dinner table, growing up. Something about how digestion and the solar plexis is connected with the immune system, which is why it’s important to go for hypnotherapy and replace bad old programming with new programming. (very cool experience). My issue is with boundaries, and it’s clear that when I’m feeling violated or subjegated my disease soars like poison in my system. When my boundaries are respected, my health is better.
I hope this posting helps someone. Wishing all of us good health (lots of shiney hair, excellent vision, a calm heart and anything else you need) and obviously a full recovery!
Posted by Paula on May 27, 2009 at 9:37 pm
Hi,
I’m relatively new to Graves’. I was diagnosed in feb. 09. I had been working with an amazing Homeopathic practitioner and when I got the “official” diagnosis, it helped us out. She has me on a variety of homeopathics and I watch my diet as well. My blood pressure went from 140/95 to 118/75. My heart beat went from 95 beat per minute to almost normal. I have also included valerian root and lemon balm in water that I learned about from Svetla. I am a teacher and my students were worried because they knew I was sick. They asked what they could do to help and we now do yoga every morning for 15-20 minutes. We use the Fountain of Youth exercises and when we began it was just 3 repetitions of the 5 exercises, now we are up to 19 reps each morning. It really has helped. I just went for blood work and will get the results this week. I’m looking for improvement. The other aspect I had to wrap my head around was the connection to MS which my mother had and died with. I continue to make changes in my life so that I can continue to get healthy
Posted by elisa on May 27, 2009 at 10:31 pm
thank you Jeffin for the strength and kindness. Take care too. I´m working, i’m scool teacher but for the next year i’ll have new kids and they would laugh with me.
Bianca dont worry, if th GD during 4 years you are on the end of GD, because Jeffin said it burns out itself.
I dont know what the best because my GD is recent but i think we must look inside of our body and give our body his needs and love. We must love ourself and do what we want. Dont stress!
Bye
Posted by Bianca on May 28, 2009 at 11:01 am
So it burns itself out? but what about my nodules and my swollen neck? Will it stay like that? I still have palpitations and it comes on more depending on what I eat. Valerian root? tell me exactly what this is and the real name to ask for…I want to know because I want to get back out to work. Please tell me also what can I do to help my hair stunted growth and thinning? I still sweat a lot and it comes on if I am anxious like if I am dressing to go out. I hate the sweating and palpitations so I dont think that my GD has worn itself out. Thank you for the comments
Posted by Ngaire on May 29, 2009 at 12:42 am
I now have minor symptons of hyperthyroidism after 2-3 years with the condition. The biggest problem was the eye disease as all other symptons appeared to disapate, the inflamation and dryness of my eyes were still a problem. However, that was until I discovered Goji juice. I have had remarkable relief almost instantly and within a few days my symptoms all were under control. It is renowned for relieving eye complaints and I can swear to this! I could not believe the relief I got and would suggest this to anyone suffering from this frustrating part of the illness. There are, of course varying degrees of severity to Thyroid eye disease and mine were possibly on the minor end of the scale but it is certainly worth trying – nothing else had worked for me before this to the extent the juice did.
Posted by Lisa on May 29, 2009 at 3:08 am
I’ve been diagnosed with Graves for two years, and my husband and I want a baby. I’m wondering if anyone out there has had success off meds during a pregnancy. I don’t want to risk side effects, and the drs don’t agree. The OBGYN says one thing, the endocrinologist another, and my family dr. says to adopt. I’m not against adoption, we actually already have one son, and are interested in adoption, but would really like another of our own.
I’d be thankful to hear other’s stories concerning child birth and Graves.
Thanks so much,
Lisa
Posted by Svetla on May 30, 2009 at 3:46 pm
Hi Lisa,
Many people wrote me emails regarding successful pregnancies with Graves’ Disease- getting and staying pregnant. I also know that PTU is not that dangerous and many doctors prescribe that to pregnant women- of course it depends on the case. Adoption is an option, but you can check with another doctor and see if they agree to work with you for a baby. It’s not impossible, I know that. Also in many cases Graves’ Disease simply disappears after giving birth to a child. I am sure many people can share their stories on the blog and give hope to women like you.
Good luck,
Svetla
Posted by emmasdilemma85 on December 10, 2012 at 1:13 pm
Hi Lisa…I know it’s a few years ago you posted this. I was diagnosed with graves disease 3 months before I gave birth. My antibodies were extremely high.which caused a lot of anxiety and worries due to the health of my baby. I passed antibodies too my son, but he was cleared within 1-2 months and never had thyroid dysfunction. He is all healthy, so it is possible to have a baby even with active disease. My antibodies were 3000% above range when diagnosed 🙂
Posted by Jennifer on December 19, 2012 at 3:35 am
I was in remission when I got pregnant with my 2nd. The pregnancy was normal. I stayed in remission. I had a healthy baby but 3 mos after I delivered my baby I went hyper again. It lasted 18 months & just went into remission again.
Posted by Tang on June 1, 2009 at 5:04 pm
Hello everyone I left a post on Graves but it was under dieting here’s my post.
I actually found out recently I had Graves Disease and it has been crazy. My husband is in the military and his command ordered him to stay home and take care of me for about 2 weeks and it was fun for awhile. Stress irritated my Graves and my heart rate would sky rocket and my doctor told me that any form of stress could kill me. Ok now at this point of course I started reading everything I could on Graves because I didn’t really want to die. Stress, Fish—Iodine, Salt, even irritated my Graves disease. My resting heart rate was over 105. Ok there is a perk to Graves Disease your weight does fluctuate you could end up losing pounds possibly. > > I have been tired a lot extremely restless at night and I have to sleep with a lot of pillows so I could breath, my Asthma does help either. I would like my thyroid to be removed and I am terrified of the radioactive pill and now I know with very good reason! My doctor’s are not willing to do the surgery as of yet but I am taking a lot of medication to control my thyroid but I still sweat a lot as I walk from point A to point B. I found out there are only 2 treatment methods for Graves. 1. The radioactive pill which is a no in my case. The radioactive pill secretes into your other internal organs your liver, your female reproductive organs too. My doctor did not tell me this but he was surprised I knew, he stated well that is only in a small percentage of Graves Disease patients. 2. The removal of the thyroid surgically this is my choice. The extreme sweating is the main reason why my doctor ordered the thyroid test, as well as the shortness of breath. I hate it when I get tired so quickly, it is frustrating my eyes are starting to bother me but my doctor did not see anything significant that would warrant any major change with my medication. I am scared that one day this disease will win as long as I have strength I will fight though. Don’t be scared to talk to your doctor he/she has to listen to his patient trust me I struggled with my doctor because he already determined that I was taking this radioactive pill and I shocked him with a No I’m Not. Remeber its your body, your choice, and your voice!
Posted by Karen on June 1, 2009 at 6:15 pm
I read your notice about having thryoid surgery or a thyroidectomy and the possible side effects and problems that can follow. My insurance required the readioactive iodine (RAI). I had a large goiter and a thryoid storm. The goiter and the RAI caused damage to my vocal cords AND 2 1/2 years later part of my thryoid regenerated itself. Thyroids are nothing to mess with and unfortunately there is not enough knowledge about them within the medical community or thyroid procedures, side effects or a whole list of items associated with the thyroid. Consider all options you are aware of before making a decision. Even then, you don’t really know the outcome because the doctors don’t either. Good luck and Prayers are with you all.
Posted by Blanca Mares on June 1, 2009 at 7:33 pm
I am here again, and I am so happy because my thyrod is OK. After the horrible experience that I had with a doctor, I decided to try new things.
It is true that you cant take high dosis of turmeric. But is an extraordinary antinflamatory.
I decided to try meditation, and I was practicing it every day three times a day. I focus my mind that my thyroid was ok, any doubt. Even in my free time, I was doing that. I put force and feelings in my thoughts. I was calmed. I went to the biomagnetism therapy ( two sessions). I got my energy back and when i got my analisis, I was Ok. I am still practicing meditation and like Svetla said: Whe should change the way that we are. My eyes everyday are much better and I am focusing in their healing.
I am still taking flax seed oil.
This experience has given to me so much good. I have been searching for ayuveda healing and It is amazing how many things of alternative medicine you can learn.
I eat better, and today it is my first class of yoga.
You should investigate more how mind affects body that Svetla says. You can find the cause of all your diseases.
Love for everybody.
Blanca
Posted by elisa on June 1, 2009 at 8:14 pm
I’ so happy for you Blanca. Thank for tell me those goods. We all need this!
Posted by Blanca Mares on June 1, 2009 at 8:35 pm
Dear Elisa:
Thanks for your words, That is not only the disease that i had. I have to continue to deal with Vitiligo that i have got since i was 6 years old.
But i am improving also.
It is not easy to get rid off the bad habits, the stress, the wrong behavior but i establish in my mind that only today i will be as relax as I can.
I dont have any pain in my eyes. That means that i am improving also in that matter.
You shouldnt be focus in the disease. Because mentaly you are attracting more. You should be thinking that you are better and better everyday, and get rid off the bad habits.
love
Posted by Bianca on June 2, 2009 at 10:55 am
Hi everyone, please tell me whats good and whats not good to eat when you have hyperthyroid disease? I have stopped taking the propanolol and Tang I was also on atenolol….I would take your advice and continue to take the propanolol…I am in public health care not because this disease is very costly and it takes a while for you to get better and also the blood tests and meds are expensive. So in public health in my country its not very good. I have a lump on my neck and what do you guys think I should do? Should I do the surgery to take out the nodule? I sweat a lot too and get anxious. My vision is not too good also now. So please tell me more about the nodules…..
Posted by Doris Katzen on June 3, 2009 at 6:33 pm
I was diagnosed with hyperthyroidism two years ago. My doctor has tried to have me take radioactive thyroid. I have been on propanolol and methimazole and my situation has been stabilized. I have resisted the doctor’s pressure because I do not know if it may create more problems for me. Would like to know if radioactive iodine treatment is the way to go or can we continue on a regularly monitored program as I am on. I am a senior and would like to hear about individual’s experiences. Thanks. Peace!
Posted by Blanca Mares on June 17, 2009 at 12:46 am
Dear Doris:
You should pospone as much as you can to take radioactive treatment. Read Svetla Books. One of the most important things is that you try other alternative medicine. It works for me. Practice meditation helps a lot, having good food is very important.
The actitude about grave disease should be that you are the winner and at the end you will win.
You should follow the prescription of your doctor but you should think what habits you still have since you were diagnosed and what different things ( good things) you have done since that time.
I have been in the computer trying more things additional that Svetla recomended, and I can tell you, they have been working in my body and in my mind.
I have been telling that biomagnetism works in my body and i got more energy after one sesion. Try that.
Regards
Posted by Bianca on June 9, 2009 at 10:56 pm
Yes Doris the propanolol is to stabilized and calm your heartrate and other symptoms associated with hyperthyroid. You should take your time and read as much material on your condition…keep doing the tests to monitor your thyroid and see log on to Svelta.s website and request all the material she has on how to control and heal your thyroid. Don’t be to hurry to make harsh decisions. Try alternative medications like natural healing herbs. Thyroid is so complex that sometimes the symptoms vary with different people…..Read more and talk to people who were diagnosed…..Bless
Posted by Blanca Mares on June 10, 2009 at 5:53 pm
Dear Svetla:
I went to see the eye doctor and he said that i must have a surgery in my eyes otherwise i would loose my opthic nerve.
My eyes have been improving they are not too big but i am still having vision problem.
Do you know how long i can pospone a surgery before start having more problems??
Regards
Posted by Blanca Mares on June 17, 2009 at 12:37 am
Dear Svetla:
I bought you Book Eye Graves Disease and I want to say Thanks for all the advices and knoledge that you wrote in that Book.
My eyes are still improving and improving. I can turn my eyes to the left and to the right, and I know, I am 100% sure that my eyes are going to be better and better everyday.
I tell everybody that you should buy that book, It is easy to read and it has so much information.
I am posponing my surgery ( If there is one) for 6 months more. My doctor told me that.
Thanks Svetla again.
Posted by judy ballinger on June 25, 2009 at 1:04 am
I have graves also and did the rdi and have had no trouble I did gain weight but I still go to the gym and try to eat healthy my friends tell me i look better I had got so skinny my doctor also said my was the worst case he had seen in years my numbers were in the 50s and 60s said if he had not found it I might not be here today
Posted by Bianca on June 25, 2009 at 1:25 pm
Hi Strong Again….I am so happy for the info…but I am afraid that it is not available in my country…can you please contact me at bianca2bek@hotmail.com
Posted by Barbara on June 26, 2009 at 9:34 am
I have had Graves’ disease for about 25 years, and have been on Carbimazole (Neo Mercazole) for all that time, mostly on a low stabilising dose of 5mg a day with occasional flare ups. Recently I’ve had a bad flare up and it’s taken much longer than normal to stabilise. I also have thyroid eye disease but that’s not too bad. Couple of observations: 1. I’ve found taking my temperature is a very accurate guide to the state of my thyroid which helps me adjust the dose between blood tests if necessary. For me, anything over a temperature of 36.0 indicates I’m overactive, even though the ‘normal’ temperature is, I think 37 i think. 2. I’ve recently suffered with gastric reflux and put myself on an alkaline diet with a teaspoon of apple cider vinegar 2 x day, aloe vera juice etc. After 2 to 3 weeks of this new way of eating, it may be a coincidence but I’m noticing that my thyroid may have actually gone possibly a bit underactive for the first time in 25 years judging by my temperature and pulse which is another good marker. Doctor is trying to persuade me to have RAI but i’m not keen. I wonder if anyone else has found that an alkaline diet has helped their overactive thyroid come down a bit? It may just be that mine is finally burning itself out.
Posted by Elisa on July 2, 2009 at 8:04 am
Hi!
I hope you are going better than the last time i was here!
Svelta, first i want to thank you for your book. Second, i want to know one thing: I was a blod’s giver and i want to know if i can give blod when my Trabs were ok.
Thank you
regards
Posted by Svetla on July 3, 2009 at 11:12 pm
Hi Elisa,
I think you can give blood, it’s not an infectious disease, but still, check with your doctor just in case.
All the best,
Svetla
Posted by shilpa on July 6, 2009 at 2:58 pm
hi nice to c ur blog as its heplful for many, although i m euthyroid now but still i suffer from weakness and dont feel like doing anything.can u pls tell me how can i overcome it?
Posted by karen on July 14, 2009 at 5:25 pm
Hi svetla,
fantastic site,so helpful,I was diagnosed with malignant melenoma six years ago (all ok now) then three years ago had my marraige break up.I was very stressed and distressed , almost immediately was diagnosed with toxic adenoma and hyperthyroidism….i eat a very healthy diet now and have managed to get my t3 and t4 normal (without taking neo mercozole)which i hated. my tsh however is still remaining very low at 0.02.
My hair has thinned to a quarter of its original thickness and is receeding.I find this very upsetting and am increasingly isolating myself because of a lack of confidence.Is there anything i can do? i take chinese herbs and vitamins and udos oil and lots of veg and fish etc all to no avail…..i am at my wits end with it feels like no where to turn….doctors just say ah sure you wont end up bald!!its so frustrating….your site is very good im hoping you can help
Karen
Posted by sbankova on July 15, 2009 at 11:14 pm
Hi Karen,
hair thinning is one of symptoms of Graves’ Disease and most likely it will disappear, as all the other symptoms, when your thyroid test results get within the normal range and stay like this for a few months. Don’t get discouraged. Meanwhile, you can take Vitamin E, Vitamin A (if you are not doing it already, plus- a hair mask with olive oil, jojoba oil, 1 tbl spoon fresh lemon juice and 1 table spoon honey. Mix all, apply, wrap and stay for a few hours. You can do that once a week. I hope this will help.
Svetla
Posted by Dear Shilpa on July 16, 2009 at 12:42 am
I undestand your feelings, i suffer the same thing. But you should take the control of the situation. The first thing is to do all the things that Svetla recommended in the books.
They give the entusiasm to keep going. I did that and I am ok about my thirod, and my eyes are better. The depression that i got is over. You should do an effort to be positive and get energies from your soul.
You will see that this experience will be the best experience that you have had because you are going to change your habbits menthaly and phisicaly.
Regards
Posted by Bianca on July 16, 2009 at 6:28 pm
Thank you Svelta….thank you for the advice on natural things to use for your hair…I have started taking the Vit E and A already….thank you
Posted by karen on July 16, 2009 at 7:03 pm
Thanks svetla for the advice,and shilpa too,yes i understand what you mean,by researching constantly , eating very well,taking supplements,herbs,accupuncture i have managed to come off and stay off all medication (much to the surprise of my doctor) for some reason though my hair continues to fall and i get dishartened , however i am determined to get totally well…. i survived cancer and got back to optimum health so i can do it again.I suppose i get frustrated with all my efforts i cant take control of the hair problem
thanks to all who have helped
best wishes
Karen.
Posted by Bianca on July 16, 2009 at 7:10 pm
The hair problem is a very big one as we women take pride in the way our hair looks…my hair is dry,brittle, stunted growth and just terrible. I wear wigs and I sometimes do weaves…..anyone knowing anything else thats good for the hair please write because what works for one might not work for all …..so all advice will be appreciated and welcomed…thank you
Posted by Blanca Mares on July 16, 2009 at 7:15 pm
For dry hair you should use Sesamo Oil, it is very good because it is a light oil and your hair is not going to be oily.
I use sesamo oil, like a night cream, for my hair and for all my body. You should check in internet about sesamo oil. It is used in the ayurveda therapy.
Regards
Posted by Blanca Mares on September 26, 2009 at 9:39 pm
I am cured.
Since i was diagnosticaded with grave disease in october of 2008, i was using alternative medicine most of the time instead traditional medicine. I can tell you that 23 of september i got my last lab analisis and my thyrod is normal. It has been the best day in my life.
Thanks Svetla for all your advices, they were so useful.
Posted by elisa on September 26, 2009 at 10:07 pm
Hi Blanca Mares,
congratulation!!!
kiss
Posted by Svetla on September 27, 2009 at 5:21 pm
Congratulations Blanca! I can’t be more happy, when I hear these words! From now on- just keep up the good work and stay in touch!
Best regards,
Svetla
Posted by Blanca Mares on September 28, 2009 at 7:37 pm
Hello everybody, Thanks for all the words. I know that you Svetla are so proud. when I was a teacher in the University, i got so much satisfaction when I saw that my students leanrt Acconting.
I have lived this process but it doesnt have an end. I know now that positive feelings and Thoughts make the difference. I know that good food means good health. I have to deal with my bad habits everyday but i know what they are. I dont take any medicine now but the medicine that i am taking is spiritually.
I want to share the follow The Secret Daily Teachings with you:
” The law is simply reflecting and givin back to you exactly what you are focusing on with your thoughts. With this powerful knolwdge you can complety change every circumstance and event in your entire life by changing what you think”
Love
Blanca
Posted by Christine on October 13, 2009 at 9:30 am
Hi, I came across your blog, and would like to share with you my experience with Graves disease. I can look back now and see just how close I was to dying the onset was maybe 7 days, I first knew there was a problem because I went to the toilet so often. But shrugged it off, then the shakes and short temper, shrugged that off as PMT. Waking up several times in the night my heart racing as though I had been running a marathon, and I had just woken up! It was all ‘explainable’ I suppose, as women we tend to put these things aside. Well, I dropped my daughter off at school after a really difficult morning with aches and pains, shakes and a fever, I went straight to the Doc’s, he prescribed me a sedative and told me to go home and rest. So I did, only I took more than the suggested dose to try and feel a bit less jumpy, I couldn’t sit still for more than 1 minute. 3 more days passed I got worse, went to a different Doc (thank GOD) he immediately diagnosed Graves. He told me later, it was a little difficult to be sure, because my eyes were not badly affected.
They called it thyroid storm, and I would never wish this upon my worst enemy, it was so close to experiencing death. The fear i had was real, and I am so grateful I am here now sharing my experience with you.
I beat it eventually after just 6 months on meds, the specialists wanted to do RAI, even talked about surgery. But I decided I would give it a go myself and try and allow my body to heal itself. It has worked for me so far I am in the 2nd year of being off the meds. I am so much more aware of what the symptoms are, I know there could be a chance it returns, but all is well and I feel good in making the decisions that suited me at the time., if anyone else has had a similar experience I would love to hear from you. Cheers…Christine
Posted by Cyndi on May 17, 2010 at 6:44 pm
christine,
i know how you felt going through the storm. i did not have that bad experience – but living with this for 2 years and tweaking my meds- my body still feels like i am in the marathon. fortunately that spring of 2008 i went to mayo clinic for my big 50 year old check-up. the typical heart test, colonoscopy, etc, and they found graves. took tapazole and had an allergic reaction- and the endocrinologist prescribed ptu. have not been able to get it under control.-since jan.2010 started pilates classes- i can walk 4 miles in an hour, no problem. i cannot waterski behind a boat- the last two summers i cannot catch my breath- i breath very heavy and hard- like gasping, when i try to ski. i was an awesome avid water-skier. this is the only physical problem. i realize i have to start taking supplements – but afraid to screw my system up any more without knowing the precise things i need, but- i made a decision to start with magnesium and l-carnetine. and thinking of getting off red meat for a while. open for any comments- cyn
Posted by jhezzie on November 27, 2009 at 6:01 am
Hi,
Not sure if you can help me. Apparantly I have Hyperthyroidism. But I don’t understand as I am so tired and have gained (can’t lose) a significant amount of weight. I am supposed to be taking methiazole (SP) but stopped as it seemed to affect me negatively/foggy. Any advice or where do I start?
Posted by sbankova on November 27, 2009 at 11:23 am
Hi,
If it is proven by your blood test results that you have hyperthyroidism (which I am not sure according your symptoms), then your doctor can substitute Methimazole with PTU- it seems you may be allergic to methimazole. Get a second opinion from another endocrinologist, something is overlooked here, probably.
Best regards,
Svetla
Posted by Bianca on December 1, 2009 at 3:53 pm
This disease is terrible sometimes for some people…I am so depressed….I think I am going through something again…I get headaches and I am very weak…I am still waiting for surgery at my local hospital and I believe that the doctors in my country don’t know much about this disease…they keep running me around with tests and more tests….I am so frustrated….I wish I can meet you Svelta…..
Posted by Christine on December 1, 2009 at 8:46 pm
Hi Bianca, I know how you are feeling, I hope soon you will find out what your thyroid levels are and get the right treatment. It is the same here as far as lot’s of tests, I was like a pin cushion!…Good luck and try and hang in there ok
Posted by jeffin cheong on December 2, 2009 at 12:31 am
Hi Bianca,
just got a posting this morning from Svelta, just to inform you, I just had my orbital decompression operation done last week, I am recovering from it now, wanna know something? It may be or feels traumatic initially, by now I am very confident that it will be alright and looking forward to some new beginning, hopefully. So , don’t give up , just hang in there, if there’s a need to correct the situation, consider it.
Don’t give up ,
Posted by Blanca Mares on December 2, 2009 at 8:11 pm
Dear Bianca:
I dont know where you come from, but I have lived bad experiences about doctors in México. I have two doctors, one It is from my medical insurance and I have to wait long time to have an appointment with him. I have another one that i have to pay everytime that he is consulting me.
I like to have a second opinion about everything. They are checking at the moment my levels.
I dont know if you can affort a private doctor, I think you shouldn´t take a risk and be waiting and waiting. If you dont have the control of your body, it is going to be worst later. Svetla said you should rest and sleep well and dont work so many hours. I dont know if you practice meditation. That is one of the important tool to start healing yourself.
Love
blanca
Posted by bianca on January 14, 2010 at 4:42 pm
Thank you,Thank you for the advice….I am presently in North America seeking treatment…but because of visa restrictions I will not be able to stay for the duration of my health care….I got a strange attack on the plane where I semi fainted after using the bathroom….the flight attendant said that I turned white and somehow I was lacking air….anyway I hope things get better. I did some test to measure my creatine levels too…I feel good that my tests was done here…I trust that it would help me to understand my situation more…
Posted by Blanca Mares. on January 21, 2010 at 1:31 am
Dear Svetla:
As you know I still am in remision and I feel great. My eyes are improving and I can sleep very well.
I would like to ask you about the new drug called Rituximab, that is a drug that has been used to treat patients with other autoinmune diseases, including rheumatoid arthritis. That drug they say helps to improve the eyes.
Do you know something about that?
Thanks for all your help.
Posted by Blanca Mares on January 21, 2010 at 1:34 am
Dear Svetla:
As you know, I am in remission and I feel very happy. My eyes are improving little by little. I can say that i can sleep very well.
I would like to ask you about the new drug called Rituximab, They say this drug helps to improve your graves eye disease.
do you know something about it?
Thanks for all your help
Posted by sbankova on January 21, 2010 at 9:21 am
Hi Blanca,
I ma glad to hear the good news about you!
No, I don’t know anything about Rituximab, it looks like it’s used for some auto- immune disorders, but I don’t know the outcome. Check with you physician.
Best regards,
Svetla
Posted by J. on March 24, 2010 at 3:59 pm
Dear Svetla,
I read all your books and I have a few questions for you. I am sort of in remission from Graves after 5 years, but my troubles continue even if my blood results are fine. My body is not back to normal. In addition to taking all the supplements that can help my health, and indeed they do help me a lot, I am working on myself. So much anger and pain from my past are emerging. I always knew about it, but tried to cope with it as a mature person. The fact is that now I believe that my antibodies and my overall health will not improve until I fully grieve. So much anger is emerging in my dreams. I cannot sleep and not because of palpitations or feeling hot, but because of this huge anger. I am afraid that if I let it go, I will explode or implode with it and will damage my health. But I cannot simply think positive or just meditate. It is like something is calling for my attention. Am I crazy or shall I follow this instinct? Is it part of Graves even when the blood results are fine? My body is covered in hives and I have too frequent episodes of diarrhea, so I am not over it – and my antibodies are somewhat still high, even if much lower than before.
I would appreciate your opinion. Many thanks for the work you are doing.
J.
Posted by sbankova on March 25, 2010 at 7:04 am
Hi J.,
you’ll be considered in remission if your thyroid antibodies are within the normal range. If they are still not- then you’ll experience some symptoms, no matter that the rest- TSH, FT3 and FT4 are within the normal range. This is unfortunately how it works. Regarding your anger- it will not probably go away just with meditation. You may have to address this anger, and resolve the issue where this anger is coming from, because if you are holding it- it will cause a lot of damage- right now you are like a balloon under high pressure, and this is not good for your health at all. You may consult a psychologist to get help in this respect, because holding this anger stops the process of recovery. The other way is to accept the situation/ person who is/was causing this, and adopt another philosophy. Talk with them openly and let them know how you feel. Or finally- leave the situation/person, if it is unbearable. There are many options, as you see. Another thing that may help is some active sport to vent out, but be careful because of the palpitations, if any. Take your time to grieve, and if the situation is in the past, accept that it can not be changed, but only accepted and make a decision to move on with your life. This is up to you and your health is your pledge. I really hope that these brief suggestions will help.
All the best,
Svetla
Posted by J. on March 26, 2010 at 12:39 am
Hi Svetla,
Thank you for your suggestions. I decided to look for a therapist, since my problems did not start with Graves and am convinced they will not go away only by treating the disease. I am in the process of grieving and I might need some help with managing the whole process. I want to be fairly “clean” after that, without carrying too much pain from the past. I wonder whether there is any study that links Graves with PTSD and whether kids with certain traumatic (and unresolved) experiences are more likely to develop autoimmune diseases. Thank you once again for confirming some of my intuitions.
J.
Posted by Julie on April 28, 2010 at 7:08 pm
Svelta,
I had my thyroid removed in October but my blood tests are still saying that my thyroid antibodies are extremely high. Is there anything that I can do naturally to try and bring these down. My blood work is good but my antibodies are “out of control”.
Posted by sbankova on April 29, 2010 at 8:00 am
Hi Julie,
if your thyroid is completely removed, you should be hypothyroid right now and you are probably taking Synthroid or similar. Your thyroid antibodies should get in the normal range as well- 6 months is a pretty good time for that. But may be something else is wrong here- I am really not sure. Also, to the best I know there aren’t natural ways to influence the thyroid antibodies- they should get in the normal range after your TSH, FT3 and FT4 have been normal for a few months. That’s usually the trend, unless you have something else. You should get a second opinion from another endocrinologist, just in case.
Best regards,
Svetla
Posted by Kat on May 16, 2010 at 8:05 pm
Hello Svetla,
I was just diagnosed with a Grave’s disease. I am in panic and I do not know what to do. I am 23 years old and I am so afraid that I will have to fight this disease or the rest of my life. Doctor prescribed me methimazole. Honestly, I am afraid to take it because of the side effects. He said that I might gain even more wait and I should starve myself. I gained weight already, which usually people say that they are loosing wait. What should I do? If there is anything natural that I can try first before traditional medicine? I am so afraid. I am crying every night. I want to be healthy again!!!! Please help me if you can!!!!!
Posted by Jennifer on May 27, 2010 at 4:09 pm
I know how you feel. However, it is time to make decisions. If you take control and eat well, especially exercise, you will have a good chance of remission. I am going to go to a natural Dr. that focuses on the endocrine system. I suggest you look into the same. Good Luck!! Keep your head up. You will be okay
Posted by lindi on June 23, 2010 at 10:04 am
Hi kat
drink lots of water, read up about a diet for graves, which by what I have found is a common diet fresh fruit & vegies, LOTS OF WATER and plenty of fibre.
since I found out last year I have been more positive about the negative, before my diagnosis, I didn’t know how to feel normal, your mind plays tricks on you, but now I know it’s most likely the disease, I say to myself calm down it’s not you, breath and take control.
understand this more about yourself and hopefully you will feel better.
what ever treatment you decide on, make sure YOU believe in it and then hopefuuly you’ll feel better about the weight issues.
good luck
Posted by Sheri on April 15, 2011 at 2:58 pm
Hello!! I was diagnosed with GD April 2010 after a year of fighting with my GP that everything was not all right with me. In Feb 2010 the goiter started to grow so I knew something was wrong, as a side note, I have nodules on my thyroid gland since 2000 but all my levels were normal especially the TSH. I was told that even if they got my levels to normal or went through the RAI that the size of the goiter would not reduce. I’m having problems swallowing and was recently notified by my GP that I now have a heart murmur that was brought on by
GD. I am scheduled for surgery in a week for thyroidectomy which I am looking forward to. My body is sensitive to tapazole so they are having trouble regulating T3 & T4 levels. I have been a serious “witch” and surprised my husband has stayed with me. I also have gained weight with hyperthyroidism and am surprised by that and not able to excersise due to my heart rate being elevated. But I am looking forward to the surgery and regaining my life afterwards…
Posted by Blanca Mares on May 18, 2010 at 3:19 am
Dear Kat:
You shouldn be afraid having graves disease, you should be taking control of your problem That is the first step that you should do. Dont think about time, think about how many things you are going to learn about the disease and about yourself. Svetla says what things you should change in your life, why you got that disease menthally speaking. I gained 12 kilos when i got that disease, i had to buy more clothes but when your thirod is ok you will lose weight without diets. Accept that process, be patience, you should take your presciption until you have the control of your mind your life and at the same time you should take care your body with alternative medicine, including yoga and meditation.
It is not only to take a pill and be ok straigh away, you should accept that it is a slow process but it could be quicker if you learn more and more about that disease.
If you cry is part of the syntoms that you have to suffer, sorry if i am so honest but it is like that.
You are going to be healthy when you do what i said. I am healty again.
You can take a short cut, having RAI, and taking a lot of medication but you are going to loose the opportunity to know yourself better, and you are not going to be stronger after that experience.
Believe me, the time passed and i was so busy learning and learning more about mind and body and looking after myself and suddenly i was cure.
If you go to the short cut, and dont understand what is happening in your life, and do the changes, other autoinmune diseases will appear in your future.
So try to change your mind, and take control of your life and be patience. Rest a lot, and enjoy little things.
Posted by Jennifer on May 27, 2010 at 4:02 pm
Hello everyone, I was diagnoised with graves desease in 07′ I am currently 31 years old. I am the type of person that takes on everyone’s problems and try to fix or heal them. In the process I lost myself and got sick. It hit me suddenly while I was working out I felt as though I was going to have a heart attack and it landed me in the ER. Immediately they did blood and my lovely graves’ appeared. I had been to my regular doctor on numerous occasions prior to this incident due to losing my hair, extreme fatige and palputations. They told me I was fine and to just try to slow my life down.. yeah right I have three children to contend with and a husband who is a way all week for work. I felt so alone and overwhelmed to say the least. I went into remission for 10 months with exercise and a good diet. I now have it back and learned that not only do I have graves’ I also have hashimoto’s antibodies. I am allergic for methozine and they do not prescribe PTU anymore. I am now faced with a decision of radio iodine or surgery. So, I have decided to make an appointment with a natural Dr. that focuses on the endocrine system. Wish me luck, I am tired of dealing with these issues.
Posted by lindi on June 23, 2010 at 9:33 am
Hello, sorry if this is too long…..
I found out that I have graves disease and Haemochromatosis in september 2009 , I started tablet treatment in feb 2010.
the dr wants me to have radiation Iodine treatment, but after reading some blogs on here I am putting this off.
My left eye was bulging, I think it’s gotten beter since I have got tablets into my system. I went to the dr today, he said my levels are stabilizing. I hope this is a good thing. I have to have a ultrasound on my neck tomorrow because my neck is swollen and I have trouble swallowing.
at the beginning I lost 5kg in 5months, I was eating what ever I wanted, and the weight kept coming off. it was great, but I felt angry and I lost my mum in June 2008 to cancer, I thought I was heading into depression, I was paranoid and taking every little thing to heart.
I was shaking badly through my whole body.
I had heart palputations and I am an Asthmatic, excersising I couldn’t breath, I then read up on graves disease andHaemochromatosis,found this is all part if it. Knowing this you start to feel a bit human, because you understand it’s,because your not a horrible person.
in December 2009 I started to gain weight, I was putting on a kilo a month, I have put on 7kg in total in 6 months, I try to watch what I eat, which is hard because I am a chocohloic. I read that a diet high in fibre is a must, so I started taking fibre tablets, so they seem to help with the weight. i try to eat salads and (fruit when I think of it)
I have thought about going to a natural path, but previous to september 2009 I had been seeing 1 for about 3 yrs, took all types of natural stuff, sometimes I think this has made it worse as he had me on Iodine drops.
at the moment I feel content, I do get very tired, I try to run everyday too get fit , not doing very well with that lol, but I bought a home gym to build up my muscles, as I have lost alot of muscle strength with the Haemochromatosis , it makes me feel better. My head seems clearer
I have been reading all your blogs for the last 6 months and I was wondering if it’s a common thing to lose weight then gain it, lose it etc?
if anyone has a any suggestions, I will be glad to hear them
thanks
Posted by Blanca Mares on November 3, 2010 at 6:12 pm
Dear Svetla
I am here again happy, because my Thirod Levels are normal. I have been normal since Jun 2009. My eyes are not so bulgy, I can sleep, I dont need to use drops. My face is changing again. I feel much better and with clear mind, I dont feel tired anymore.
The good thing is i am not taking any pill since that time.
The only thing that i am using is MMS ( Miracle Mineral Suplement), I take the solution twice a day.
I have researched about this product and i think it is fantastic.
In the story that i wrote i said Thanks to Svetla, Jim Humble and Andreas Moritz. I got all the information from you and these authors to be healthy again.
Love
Blanca
Posted by rachel on December 13, 2010 at 11:57 pm
hello. i need help in the most desperate way…. can any one out there tell me if a high t-4 is an idicative of hyperthyroidism or graves. mine landed high on a lab and nothing was done, i really suspect that at the time it did, i was experiencing a thyroid storm, and was in the er when this test was done. now here is the kicker, i did not know my t-4 flaged high until few weeks agoe when i got my labs and looked at them… it flaged high back in july of this year. what h— is going on here….
Posted by patty on December 27, 2010 at 5:21 am
Hi, looking for some feedback on anyone diagnosed w/graves disease being pregnant. I am 30wks & was diagnosed two weeks ago w/GD. I am currently taking 300mg ptu daily. My tsh is 0.006 & just recently found out it has been that low since September when my first ob dr did a test. I was not notified by them of This because they referred me out to a high risk ob dr due to some heart issues I was having & They felt I was too high risk for them. I suppose i slipped thru the cracks! How unfortunate for me & my baby. It was my cardiologist that found out my tsh. Im just nervous & concerned on how This may effect my baby being that if I do in fact Have GD & was not treated until now. Anyone have any answers for me?
Thanks
Patty
Posted by sbankova on December 27, 2010 at 9:23 am
I’ve heard of many cases of successful pregnancies, even with Graves’ Disease. Sometimes the hyperthyroidism is induced by the pregnancy itself, which means it may go away after the delivery. PTU is the correct medication, as it is considered safer, I am not sure about the dosage though..The best thing to do is not to worry right now and no stress at all- this is crucial for Graves’ disease, rest a lot and take a leave of absence if possible. Better find an endocrinologist who specializes in cases with hyperthyroidism and your thyroid test results should be monitored every month. For palpitations you can take Lemon Balm tea, it is safe, to the best I know, also do meditation. You and your baby will be fine (baby must be tested immediately after delivery for thyroid antibodies). This is to the best I know, I hope it will help you.
Svetla
Posted by Patty on December 27, 2010 at 4:15 pm
Hi, thank you for your quick reply. Were the successful pregnancies from mom’s who did or did not take the meds? I did not start taking ptu until week 30 and have recently found out that i actually had gd since week 17 or possibly even sooner. I know that the 1st and 2nd trimester are critical times for development and have read that if mom has gd it is very important to treat immediatly and as soon as possible during pregnancy. With me not being treated until week 30, it causes much concern for me regarding the well being of my baby. Plus, I am on Coreg (beta blocker, for a coarctation I have) and I have been taking this throughout my entire pregnancy. I read too that it is recommended NOT to take this if pregnant and if needed, to only do it for a short period, but again…I have taken it my entire pregnancy and still taking it along w/the ptu now. I am just so concerned and pray every day for a healthy baby. I am doing my best not to worry, for I know worrying is my enemy right now. But it has been a task. Possibly i should just stop reading so much stuff. I am looking forward to getting your books, however and educating myself on gd and finding a cure/remedy in great hopes to avoid RAI or surgery. Any info, recommendatons or feedback you or anyone can offer, would be greatly appreciated. I am suppose to have a c-section by week 36 because my cardiologist does not want to risk me going into labor so I do not have too much longer. I just want comfort in knowing I am doing the right thing for my baby. My ob dr has informed me about thyroid storm and the importance of taking the medicine. He says he has not ever had a mom refuse to take meds. I did not refuse, just wanted to know it was the best. After reading that more harm is caused from NOT taking the meds (especially early in pregnancy), I decided to go ahead and take ptu. Hopefully no harm has been done.
Any help or advice is greatly appreciated. Thank you in advance and look foward to hearing back from you, Svetla.
Patty
Posted by sbankova on December 28, 2010 at 12:16 pm
Patty, I understand how you feel- but as I said, do not worry, everything will be fine..The more you worry, the lower your TSH goes, not to mention the thyroid antibodies, which probably go up.
Moms with successful pregnancies were taking the meds- I mean PTU, but I am not sure about the dosage- depending on their TSH, I guess..I don’t know about the beta- blockers- usually they are prescribed for palpitations, so better calm down..
I am sending you a report of research regarding Graves’ disease and pregnancy- you will see that the situations were resolved after the delivery, in most cases, and I am pretty sure that your case will be successful too.
Click to access PregnancyThyroid.pdf
Let me know if you have problems with downloading, I can send it via email too.
You are almost there, baby will be OK.
You can also post questions on my Facebook group “Graves’ Disease, Hyperthyroidism and Thyroid eye disease”.
P.S. No need to buy any of my books right now, we’ll talk again after the delivery, if you still need them..And let me know how it goes. 🙂 We may have our first Graves’ baby on that blog!
All the best,
Svetla
Posted by Patty on December 28, 2010 at 5:09 pm
Thank you Svetla, I do appreciate your positive words. It has been a rough road these past several months, but my Faith, Family and Friends are helping me to stay positve. I will defintely keep you posted and I do still want your books. I want to try all avenues of beating this thing naturally. I will check out the Facebook Page as well. Thanks for sending the article. I am going to check it out now.
Have a Blessed day and thanks again!
Patty
Posted by Cheryl Compton on January 17, 2011 at 2:29 pm
Hi Svelta,In regards to the Graves.I was diagnosed in 06,went into remission in 08,now it has returned as of Dec10 in full force.Im back on PTU which my primary doctor has put me on.The closest endocrinologist is 400 miles away!Was wondering when I should go and have my blood rechecked.My primary never mentioned it.:/Ive already decided against RAI.Ive been going through my old med records from my last endo and he had me go every 6 months for blood but Im a bit concerned that this may be a little too long to wait.In other words,Im pretty much treating myself.Thank you for your time.You truly are a Godsend.
Posted by sbankova on January 18, 2011 at 9:43 am
Hi Cheryl,
if your Graves’ is active now your thyroid tests should be every 4-5 weeks, not more. 6 months is for people that are euthyroid. I understand that you live far away from doctors and it will be very inconvenient for you, but what I would do, if I were you is to order thyroid test kits online (I believe they cost around $39,95 or similar) and test myself on my own. This is what I have done some years ago when I had Graves’- these tests are pretty accurate and very easy to do at home. In accordance with the results your endo can adjust the PTU accordingly, even by phone.
Best regards,
Svetla
Posted by Cheryl Compton on January 18, 2011 at 1:30 pm
Im ordering my test now.I love learning something new everyday.Thank you so much.Cheryl
Posted by Andrea Arthur on July 13, 2011 at 8:52 pm
Dear Svelta
I have recently purchased your book on living with graves and found it wonderful,i have not been to see the endo yet (next week is the big day)but i begged the doctor to speak with him so i could get some meds sraight away as they said a three week wait (this week is week five!)sought of figuered it would be later than sooner.i have been suffering with all sorts of symtoms since last july 2010 it started with shaking in my hands and legs .i could not understand why but i just got on with life.then i would get the occasional paralysis in my fingers(two fingers would just lock together) i would have to pull them apart with the other hand to get them working.i have also had urinary incontinence when i cough ,130bpm heart rate and palpitations and started with bags under eyes then bags over eyes and 3 months ago a difference in size of my right eye .i also developed a dry itchy scalp 7 months ago and thought it was my shampoo so changed to organic chemical free products .then 5 weeks ago my hair dresser found bald patches .i was absolutely devastated you can imagine i have ALOPECIA! i freaked out went to the doc and here i am now.i cant seem to find much info on graves sights about this aspect and this is my major concern i can deal with the other crap but losing my hair is making me feel suicidal at the mo as my hair is long i am wearing it up but if it gets much worse i will not go out .i.know i am being pathetic but that is the way i feel .i will give you my stats but as i am in England they may be a bit different to yours in the US.my serum free t4 is48.4(normal range 10,3-24.5)my t3 is 20 normal (3.5-6.5 )and my tsh is 0.01(normal 0.27-4.20).this is what the docs are basing their graves suspicions on ie high t4 low and supressed tsh.i had an ultrasound yesterday and i have no nodules or goiters which is good news and boy could i do with some of that!can you please give me some advice on the alopecia aspect i am taking 2000 mg of epo and 600 mg of flaxseed a day also trying a gluten free diet as gluten acts in the body the same way as thyroid anti bodies and i am assuming they are the culprits (the little buggers)the doctor is an idiot and said i should shave my head or get a wig NICE . MANY THANKS AND LOVE Andrea x x x x
Posted by tiffanie on July 22, 2011 at 5:46 am
I have graves disease and quit taking my meds how harmful can this be?
Posted by sbankova on July 24, 2011 at 6:06 am
In some cases, depending on how severe your Grave’s disease is – it could be very harmful not taking the medication …I would suggest you to “buy some time” until things gets clearer, or better, which ever comes first..I know how difficult this could be, but it’s for your best..and if you have any specific questions, do not hesitate to ask- I’ll be glad to answer to the best I can..
Posted by Danielle on August 2, 2011 at 2:07 am
I too have stopped taking my meds.
Posted by tiffanie on August 5, 2011 at 6:43 pm
I seem to have severe muscle weakness and I am starting to feel as though im gonna faint…. does anyone have any tips of dealing with these?
Posted by Linda Cormack on August 31, 2011 at 12:20 pm
Hi to anyone out there recently diagnosed with Graves Thyroid Eys Disease. Hopefully “unlike myself” you will have found a great doctor and endocrenologist, but if not please find out as much as you can about this horrible disease on blogs like this. I was mis-diagnosed in December 2006. I was extremely ill and told by my GP that I had a “virus” oh how wrong they were. In January 2007 on top of various problems my eyes stopped moving. I mentioned this to my GP who ignored this at first. I was then diagnosed with a severely overactive thyroid and TOLD not asked that I would need to have RAI. Not knowing anything about my disease I had the RAI in the February. Unfortunately about 5 weeks later my eyes started to really really bulge and more unfortunate this was caused by the RAI. I found out too late that if you have eye problems RAI should not be given. I then ended up that my eyes were about to pop out of my head and was rushed into hospital for emeregency bilateral orbital decompression. This was done up through my nose but due to the severity of my swelling it wasn’t enough. Being in unbelievable pain I was then rushed back into hospital for emergency decompression through my eyebrows. Most of my eye sockets had to be cut away to make room for my eyes to be pushed back into my head. The swelling was still continuing so I was then given a course of radiotherapy (12 treatments). This eventually helped with the swelling but caused various other problems. I was then told I would need various squint surgeries to align the eyes back up again as they had been put back basically squint. Unfortunately this hasn’t worked as due to the severity of my disease each time they tried to operate the muscles just kept breaking. My doctors all admit they haven’t seen such a bad case and none of them seemed to know what to do. I am now 5 years or so down the line. I am now left with severe double vision. I have to keep one eye covered at all times to enable me to kind of see where I am going. My life has been ruined by this disease and my the mis-treatment I was given. Because of this autoimmune disease I have since developed rhumatois arthritis and unfortunately lately I have been diagoned with Sjogren’s Syndrome. This is awful in itself as it dries the eyes out so badly that I am on hourly eye drops and fake tears This is a warning to anyone find out all you can before going ahead with any treatment. I am now basically housebound unless someone takes me out. I used to enjoy life and had a great job but all of that has been taken away from me. Find yourself a good doctor and good luck. Hopefully you will have more luck than I have had.
Please feel free to contact me by email if you wish to know more my email address is wee_linda2001@yahoo.co.uk all the best.
Posted by Trish on September 6, 2011 at 3:56 am
Hello Graves Disease Compatriots,
It is inspiring and frightening to hear your stories. October 2007 was the month my world changed. I had been having symptoms for over a year, hot flashes, hair loss, weight loss and sudden mood changes which my doctor said was menopause. At age 54, I had my annual physical, The doctor ordered a blood panel and found TSH measured 0.03 MIU/L, T3 of 1410 ng/dl, and T4 of 5.1 ug/dl.
I got a call a few days after seeing her, and she asked me to come in and discuss the lab results. I had no clue, but suspected bad news. Graves Disease was her diagnosis. She prescribed 30 mg of PTU and referred me to an endo, Dr. Izon, the only one practicing in my town. I had to wait 3 months to see her. She changed my meds from PTU to methimazole, ordered an Iodine-131 scan and recommended RAI.
I started researching. I continued to see this endo for about a year, and refused RAI. I wanted to discuss alternatives to RAI like diet and supplements, meditation and exercise. I began taking L-Carnatine, & started meditation. I think this made my TSH soar, from nearly zero to 15 MIU. For several months, my labs were erratic, a roller coaster. The doc stopped my medication several times, making things worse. Finally she suggested I find another doctor. I now see Dr. Sarapura in Denver, a very kind endo who takes time to talk and is open to working with her patients.
I take 1T of flax oil per day, completely cut gluten out of my diet, eat more vegetables and brown rice. Supplements I take include Mg, B-50, Omega 3, C-2000mg, D-3, 2000 mg, and a multi without Iodine or iron. This past July, my labs were normal for the first time in 3 years. I was so happy I wept. I know I would have had faster results if I had been working with my present doctor at the start. I am now taking 5 mg of methimazole 3 times a week and hope to wean my thyroid off all meds by next spring.
I think the most important diet changes I made were to stop eating gluten, (which cranks up the autoimmune response), and start taking vitamin D-3, an often overlooked vitamin that really helps the immune system recover.
I had a slight eye protrusion, but the flax oil helped reverse that. I never developed the tremors characteristic of Graves. I am now headed toward hypothyroid disease, and have gained about 12 pounds but am holding steady.
Graves was in my family history on my mom’s side. She actually had Graves when she was about my age, and had half of her thyroid removed but didn’t think it was important to tell her children. Her sister’s daughter was diagnosed with both Graves and Hashimotos, and is living a normal life now after alternative healthcare. Hashimoto’s is on my dad’s side. His sister and her 3 children have it, and all take T-4. My 21-yr old daughter was diagnosed with hypothroidism 2 weeks ago. She had gained about 30 pounds since high school graduation and knew that wasn’t normal. She is in the initial dosing stage, starting with 25ug of levothyroxine per day.
My next project is to research family disease history, if I can find any resources. Many of the folks with answers have passed away. Best of luck to all of you, but most of all I wish you perseverance, since YOU are the key player in getting your health back. I thank God for Svelta’s site,books, and her sage advice.
All the best, Trish
Posted by Mylee on November 1, 2011 at 12:58 am
Hi All,
I have just recently been diagonised with Graves Disease & it came to my attention as my period has stopped, we were trying to conceive so it was a shock to learn that the reason they stopped was due to Graves.
I just wanted to know if anyone else has been thru this & once you started taking meds, did it take long for your periods to return?
Mylee
Posted by sbankova on November 1, 2011 at 2:25 pm
Hi Mylee,
the problem with your period is a symptom of Graves’ Disease, it will get into the normal once your thyroid test results, TSH, FT3 and FT$ get also within the normal range. This is like with every other symptom. And it’s different with everyone, nobody can tell for sure.
Be patient, it takes time, may be some months..
Posted by Lori on November 7, 2011 at 1:33 am
Lori. was just diagnose with Graves Disese today ,don’t know much about it but was wondering if this could keep me from staying in the military???
Posted by Earwin on December 4, 2011 at 2:33 am
I started menopause 4 years ago, about 2 years ago it seemed i was going into menopause on steroids. Alot of hyperthyroid symptoms mimic menopause symptoms only its like 100 x worse. This past May, my son, an army medic was home and asked “What’s up with your mad eye moody look , ma? ” I had noticed like a week a or so before that my left eye was a lot bigger then my right eye. Well after a trip to the Dr and some blood work, sure enough it was hyperthyroid and he added diabetes to the mix. Well, i didn’t believe the diabetes part and made an appt with an endo guy. Thankfully i don’t have diabetes, but i do have hyperthryoid and graves disease. This dr wanted to remove my thryoid immedialty due to my medical history of lots of medication allergies. I was so glad i found your site. I told him no way are u just going to remove my thyroid without at least trying medication first. I immediatly started acupuncture and that relieved alot of my symptoms till i was able to find a dr to work with me. I also started a diet for hyperthyroid and am feeling much better. I am currently taking 40 mgs of methimazole a day. Most of my sypmtoms have disappeared and my eye appears more normal now. I have been on the medication 3 months. If i didnt find your site and educate myself- i hate to think of my life now with no thyroid. Thank you so much for your knowledge!!
Posted by jeffin cheong on December 8, 2011 at 6:23 am
I have suffered from this dreadful disease, thyroid eye dieases, since 2009 and has gone to a numbers of specialist in this field, I am now been treated in Singapore, I believe its the best in this region, yes, the best but what they did was to monitor the condition and advice, they have prescribe drugs like Methotrexade, prenesolone and eye drops, I used these drugs as per their description obedientely until I saw another specialist, Endocrinologist, that tells me that my liver and kidney is on its way out, especially my blood sugar starts rocketing, Basically, I have to make decision, to continue with the Drugs or perhaps drop them.,I was supposed to have eye problem but now I have host of other problems, tough! isn’t it? both my eyeball has tilted downward due to the enlarge muscle and the Dr. said they could correct them later via surgery, Strabismus, WOW! Scarry, But now I have drops all the drugs and my eye has somewhat aligned , thanks to the theraphy that I have started and I have been assured that it can be healed completely, Both my eyes has improved leaps and bound, except the eyes are still redish but subsides later in the afternoon, I wish to inform everyone out there with these disease , help is on the way, don’t give up, a new revolutionary drug free methods of healing is here already, I am confident that this methods will not heal our eye problem
Posted by jeffin cheong on December 8, 2011 at 6:49 am
I am confident that this methods will not only heal our eye problem, as it also heals many other sickness as well, the Therapy is knowns as “JIN CI’ theraphy. I am amazed at how much it has help me even my eye specialist couldn’t explain it, I know all of you knows nothing about it, I shall explain as much as I know, it is basically a traditional Chinese practice/healing, it uses a piece of Jade, size, 11/2″ X 31/2″ thickness over 1/4”, the therapist has been trained by their master and they knows the body’s energy chanell/Meridian point, all over our body,with the Jade press into certain point,it unlock the blocked energy that’s travelling all over our body, hence enabling our blood circulation , metabolism and our function of our organs to be revitalised, once these affected systems or fuctioning organs are being uplifted by these magnetic high speed movement, our body will heal itself. it ‘s happening to me now, I know it, although the treatment is very painful( excruciating) it leaves no mark and I think it’s worth it.
you can contact me if you wish to learn more , bye for now
Posted by philip on March 23, 2013 at 12:11 pm
hi
i would love to hear more about your experience with the jin ci therapy. how are you now? i’d like to contact you, i couldn’t find your mail-address. philip
Posted by Olivia on April 23, 2012 at 3:43 am
M suspected with Ted Im so depressed
Posted by Blanca Mares on July 5, 2012 at 7:12 pm
Hello Everybody:
I have long time without writting in this fantastic blog. I had graves disease and my levels are still normal. The good thing is i dont take any medication, and my eyes are 97% normal. In the time that i was ill, i couldnt close them, it was difficult sleep. The only thing that i take everyday is MMS ( Miracle Mineral solution-Jim humble), I have been taking it for more than two years. I have been helping people here in Puebla-Mexico with the same problem and they have been drinking some dosis of MMS everyday plus all the things that i learnt from Svetla and is the best treatment that i have seen. Nobody think that i had bulgy eyes, nobody think that i got grave disease once. You can see in my past writting how i also suffered.
Posted by sbankova on July 16, 2012 at 6:55 am
Hi Blanca,
glad to hear from you! Would you write a short guess article for my blog/website about this Miracle Mineral Supplement? If it is helping you it may help other people as well..
Svetla
Posted by Blanca Mares on July 16, 2012 at 8:30 pm
Jim Humble web page is:
http://jimhumble.biz/
You can read about MMS. I want to tell you that this mineral is not aproved by FDA, but i would like you to read the story why is not aproved. It is so cheap and it really works thats why the pharmaceutic business dont want anybody use MMS. I have not only my testimony about my disease I have other testimonies about Thyrod but also cancer, arthitis, fibromialgia, diabetes. Now I am helping many people telling them how to use it from everywhere. Andreas Moritz is an ayurveda practicioner very famous in the world and he recomended MMS. If you read my story Svetla ( In the book) I said Thanks Svetla, Andreas Moritz and Jim Humble. Since that time i have been using MMS. I have helped people with cancer in the thyrod, not only graves disease.
Posted by Olivia on April 23, 2012 at 3:53 am
My eyes is slightly bulging what natural remedies can i take to stormy eye from getting worse. … Really need needhelp pls thank you
Posted by Louise on July 15, 2012 at 6:18 pm
Where can I purchase this miracle mineral solution?
Posted by Blanca Mares on July 16, 2012 at 8:37 pm
You can buy MMS in USA in this web page but If you decide to buy it I will help you how to use it because it is very powerful. I will give you the protocol or dosis that you should take.
http://www.mmsdr.com/
Posted by Blanca Mares on July 16, 2012 at 8:49 pm
when I was so ill, i was devoted to know all about my disease, mind and body. I got so much information from svetla, however I learned so much in Andreas Moritz books. I understood that my body was so contaminated and i needed to clean it. The reaction in our body because the contamination that we have is manifested in different ways . Some reactions are cancer, some are arthiris, some are graves disease, some are different diseases. So I was cleaning my body, I cleaned my liver ( I am still doing it), my kidneys, my intestines ( They are very important), I was eating healthy food, practicing yoga, not using thootpaste ( it has fluor), and taking MMS. I was not using iodine to desinfect the vegetables, vitamins. I didnt know when exactly i was OK. I was so entusiastic in my big proyect that i went to a magnets practicioner session and he told me my thyrod was OK. I went next day to the lab for a test and it was true. I do a test every 4 months since that time.
Cleaning our body is the most important thing for the disease that we have. When the body is clean our inmune system is stronger.
The good thing is that here in Mexico I give courses about MMS to doctors. they come to me to learn more about MMS. If someone told me when i was ill that in few years i would give courses to doctors I couldnt belive it. Miracles appear when we are ready and with a possitive actitud. Disease brings you the oportunity to change your life and be happier.
Posted by Louise on July 21, 2012 at 9:57 pm
I’ve had Graves Disease for 3 years now and my thyroid still isn’t functioning properly. I’ve had 3 sessions of RAI and it still didn’t kill my thyroid. Any suggestions out there on what I can try?
Posted by Jennifer on December 19, 2012 at 4:06 am
Thyroid removed or methimazole. Methimazole put me into remission after 18 mos. I developed graves disease after a bad auto accident & delivering my stillborn daughter @ 5 mos. gestation. I was on PUT for about 3 mos and then broke out in hives head to toe and had massive joint pain. The doctor took me off the meds. I went into remission and did not need them again. I was so happy as I was trying to having my baby number 2. The car accident, stillborn baby & then graves disease! I thought God didn’t want me to have another baby. After two more pregnancy losses but still stayed in remission two years later I conceived my beautiful baby number 2 and had a full term healthy baby & pregnancy. Three mos later I went very hyper. I went on methimasole for 18 mos & just went into remission again. I can’t believe it. I never thought this would happen again. The weird thing is that once I went into remission I dropped all my excess weight from my pregnancy two years ago which I could not loose for the life of me with active graves disease and on methimasole.